National Rare Disease Policy urgently needed - senator

There is an urgent need to formulate a National Rare Disease Policy to ensure that information, diagnosis and treatment of those with rare diseases are more strategic and being developed with patients as its guide, said Senator Ras Adiba Radzi.

In conjunction with Rare Disease Day observed today, Ras Adiba in a statement said this is crucial as the number of medications available for rare diseases is on the rise and increasing numbers of patient groups will advocate...